tag:blogger.com,1999:blog-370109946854261159.post7143280644205190615..comments2023-06-25T05:24:34.527-05:00Comments on Our New Adventure: The Invisible DiseaseTracy1918http://www.blogger.com/profile/11192789929262055057noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-370109946854261159.post-59215552088899412352011-04-11T13:34:02.936-05:002011-04-11T13:34:02.936-05:00It is true that people really have no idea. D fami...It is true that people really have no idea. D families make it look easy. Even after the hospital stays we had, people were perplexed about why our son would need that type of care. <br />Karen....I do believe God is with you and will help you, but I do NOT believe that he gave this to you. I just can never believe that.Shannonhttps://www.blogger.com/profile/14106911497739777113noreply@blogger.comtag:blogger.com,1999:blog-370109946854261159.post-55865258965933242992011-04-06T19:26:15.813-05:002011-04-06T19:26:15.813-05:00It is hard. I hate having to constantly monitor wh...It is hard. I hate having to constantly monitor what I'm putting in my mouth...planning...getting low....feeling sick when I'm high. <br />My sister tells me that I got this disease because God knew I was strong and could handle it. I try to think of it that way and show people that, yeah it's difficult, but I can live a normal life. <br />I completely agree that, until you live the D life, you have know idea what it's like. I try to make it look easy...but at times it's exhausting!Karenhttps://www.blogger.com/profile/08841025291373922936noreply@blogger.comtag:blogger.com,1999:blog-370109946854261159.post-79010706584957243322011-04-06T16:00:24.458-05:002011-04-06T16:00:24.458-05:00Yes, yes and another yes. On one hand I am so hap...Yes, yes and another yes. On one hand I am so happy Ellie looks like every other kid so she isn't treated differently. On the other hand I want people to treat her differently because she has a life threatening disease!! <br /><br />I also empathize with the 'serious' or 'not' factor. The mental image of the old people on the commercials saying they just need to take their pills and eat right . . . . if only so for our little ones.<br /><br />::sigh::<br /><br />So glad we have the DOC so we always have a place to go where people know what we are living.Amyhttps://www.blogger.com/profile/02826248976364694184noreply@blogger.comtag:blogger.com,1999:blog-370109946854261159.post-2612134661074904122011-04-06T14:34:16.742-05:002011-04-06T14:34:16.742-05:00It's true...one of my friends was diagnosed as...It's true...one of my friends was diagnosed as a sophomore in college and I remember thinking, "that sucks" but I really didn't know much about it and how HARD it is. Oddly enough I was diagnosed the very next year during our junior year. Unfortunately a lot of people don't care about something until it happens to them, which makes sense since it's hard to care about and advocate for every single issue out there. I also think about how I must look to others--on the outside I look healthy, I'm a normal weight, etc. But on the inside I could be shaky or exhausted or mentally defeated. That's kind of a good lesson for everyone...you never really know what's going on with someone until you ask or they open up and tell you!Valeriehttps://www.blogger.com/profile/17032040751678678327noreply@blogger.com