Diabetes is such an invisible disease. One look at Matthew and you see a healthy, average kid. He's thriving. He runs around like a healthy child should. He's playing soccer. Life appears to be normal.
Which is a blessing.
It's great for Matthew because he doesn't seem "different" and people don't look at him sideways.
But the invisibility means that people don't see the seriousness of diabetes. They don't realize how often we have to make him bleed to check his sugar. The counting carbs. The weighing and measuring every single meal. Battling highs. Middle of the night checks. The frustration Matthew feels when he's low at school and has to stop to check his sugar.
(Which, by the way, he didn't yesterday. Even though he felt low. His teacher sometimes asks what his number is in front of the whole class and he hates that. Of course, her heart is in the right place, but he hates it. So he didn't check. Great. No worries though, we have a plan.)
Okay, back on topic.
The truth is.....Matthew isn't your average kid. Every day he (and all those other kids with D) deals with one of the worst diseases you could possibly have. It never ends. There is no break whatsoever.
So.....This is what concerns me about that. How can money be raised for a cure....or better tools to help with this disease......when people don't know what diabetes is really like for our kids?
They think this is easy. They think this is no big deal.
I didn't think it was a big deal until it happened to us. I thought if you had diabetes, you had to have shots and you couldn't eat sugar.
Until you live it, you have no idea.