I recently spoke with the CDE who is going to train us on the pump. He's a legend of sorts around here. He's now married with kids, but apparently when he was a younger, rather rambunctious boy.....he had a pump that he would swing around like a weapon! Needless to say, Matthew cannot wait to meet him!
Anyway, I know very few adults with Type 1, so talking with him on the phone recently was quite enlightening.
He said the hardest part of Type 1 is that it never ends.
He's a grown man, working to support his family....but he still has to check his sugar. Count his carbs. Calculate the appropriate insulin dosage.
He loves to watch his kids play sports! But even then, he's not 100% focused on his kids because the diabetes lurks in the back of his mind.
Vacations are never really vacations. Not for him. He still has to count his carbs. Check his sugar. Calculate the insulin.
You get the drill.
I don't let my mind go down this road very often, because it breaks my heart. It makes me so sad to think that Matthew will never get a break from diabetes.
Every single day.
Every single meal.
For the rest of his life.
He will be thinking about CARBS. And BLOOD SUGAR. And RATIOS. And ISF. And SITE CHANGES. And HIGHS. And LOWS. And A1C numbers.
He will never get a break.
Let's all pray for a cure. (Before the college years would be great!)